Sunday, March 29, 2015

Fun with George


     Each student in Mrs.Brown's preschool class gets to take George home for a weekend.  They fill a notebook up with pictures and stories from his adventures.   This was Emily's weekend with George and she loved every second of it.  I think we may end up with a George that lives at our house too because she did not want to give him back!
George got to play dress up on his first day at our house!

At a friend's birthday party from school!  

George went down the slide...

And jumped in the bouncy castle!

Then he sat the table for pizza, cake, and ice cream!

Emily reading to George.

Having fun on the swingset!


Tuesday, March 17, 2015

Happy St. Patty's Day!

They may not be Irish, but they are the cutest "leprechauns" that I've ever seen!


Monday, March 02, 2015

Matt Update

   I am very nervous to post this, but... Matt has not had a TRUE, actual, real fever episode since December.  He did develop a fever in January around his "scheduled" time, but it ended up never spiking to a high temperature and he tested positive for a respiratory virus so we attributed the fever to a viral illness.  That being said, has the streak of high fevers ended after 10 months???  So while I remain clueless as to what caused the fevers each month, I am thankful for now that they have ceased to exist for awhile at least.  His infectious disease doctor feels that everything he has been through is attributed to his poor immune system (back to the original diagnosis of transient hypogammaglobuneima), which could definitely be the case.  His immune system levels HAVE improved but he still has a ways to go.  His ID doc thinks he may outgrow all of this when he is 3...  and if this is true, I would be overjoyed.  He will continue to be "asthmatic" though, but hopefully we can continue to keep that well under control with maintenance medications and routine monitoring.  I hope this post does not jinx me!  Here's to hoping and praying his health continues to improve, he continues to gain some weight back, and he quits giving me grey hair!  (And P.S.  I think he is finally gaining a little weight after a year of gaining nothing!!!  It's amazing to see him so healthy!)