Monday, August 18, 2014

Matt's Surgery

     Although Matt's first attempt at surgery was delayed, he finally did get his adenoids out on August 14th!  He also had an airway exam done at this time which showed he has a slight "congenital anomaly" (born with it) of his right airway.  They have called what he has a borderline "pig bronchus" or "tracheal bronchus".  This means when his trachea divides into the right left sides down to his lungs, his right side takes off almost directly at the carina.  In addition to that, he also has a "pocket" area off to the side at the site where it begins to branch off, that is collecting mucous from his lungs and letting it sit and grow germs.  Nothing "major" grew out of it when cultured after surgery, but this is probably due to the fact that he was blasted with heavy antibiotics a few weeks before and they killed everything.  I do not know what this means for him in the future and it may possibly be something he grows out of as his body gets bigger and "stretches".  Needless to say, I have a few questions for the doctor at our follow-up appointment but I'm hoping that as he gets bigger, everything will get better.   I don't quite understand it all myself so this is the best way that I can explain it!
     As far as his lab work and diagnoses go, Matt for sure has Transient Hypogammaglobunemia.  The best part about this is he WILL outgrow this with time!  It may take years, but it will not be permanent.    That being said, frequent labs and doctors visits remain in our future.  I told Stephen I keep wanting answers but I finally realized, I do have an answer.  But I just don't like it.  I want to prevent him from getting sick, but unfortunately I cannot wholly prevent this from happening.  I keep him in a "bubble" as much as possible but I want him to have a life still.  We do not take him to church, he is currently out of daycare, and we keep him home more often than not.  But I still cannot prevent him from getting the odd germ here and there, or the same bug over and over again-- and that is what I have a hard time as a Mama seeing because my little guy has been through enough already.  That is what I wish I had an answer to-- a way to prevent him from ever getting sick again.  I know that is not a possibility, but one can wish, right? 
     As we approach this flu, respiratory virus season this year,  please say a prayer for my sweet little boy to avoid a repeat of last year!  I am one nervous mama already and it is still hot outside.  I will be praying to put my trust in the Lord with Matt--to see him grow healthy and strong. 

In the Pre-Op Area

Sleepy baby on the way home-- all done!

Nap time with mommy-- I got in a lot of snuggles that day!

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