The Poole Family: Matt update

So as luck would have it, Matt's regular doctor was OUT of the COUNTRY during his fever/illness. We ended up seeing a different pediatrician in the practice who is equally as great but very unfamiliar with Matt's history. He decided to do a full workup as usual (blood testing and urine testing) along with antibiotic shots. He did give us steroids based on the fact we are trying to rule out the PFAPA as previously mentioned on a post. The nurses did GREAT and got everything not the first attempt-- however, this is the second urine cath Matt has had done and when he went pee afterwards, it hurt.... so then he decide to REFUSE to go. How in the world does a 19m old refuse to go pee!!!!?!?!?? He did though. For almost 17 hours... At 4am, I gave up and headed to the ER because he was so uncomfortable, in pain, and I had tried everything I knew to do at home. The sweet ER nurses helped me hold my child in a sink of warm water until he peed while singing songs and blowing bubbles for him. He screamed the whole time! They went way above and beyond their job description that night comforting and taking care of not only my child, but this sleep-deprived and stressed out mama as well. It took about 24 hours for him to pee normally again after this, but he did GO which was the best thing. If he had not gone, we would have ended up with a Foley catheter in place for an entire week! So that being said, the fever lasted about a total of 4 days this time around and was gone after 24 hours on the steroids. Does he have PFAPA? Only time will tell-- but his lab work was crazy high with infection/inflammation markers and definitely made me a super worried mama this time around. I have joined a PFAPA support group and one of the dad's on the group described his daughter as "the sickest, healthiest looking person". Those are words straight from my mouth!!! That is exactly how I describe Matt to other people. For now, I will keep tracking his fevers and symptoms as this is the only way to diagnose this syndrome.
On a side note, our children are now out of daycare and we have finally hired a nanny! She is great, they love her, and we are super happy having them home. I wish Matt could have more interaction with kids because Lord knows he needs it, but this is definitely the best thing we could do for him right now since his immune system is still pretty low. Continued prayers appreciated for him as we move forward in figuring out what keeps causing his little body to get so sick every month!